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PHIMA Aptsource is in the process of developing a solution framework based on IEEEP2407 Standard for Personalized Health Informatics (PHI) . The solution framework should enable software agents to run at data providers. These agents will be used to upload data from providers to a centralized repository in a common format. The framework can be used to build a system that will essentially be an inversion of the current approach to medical records, in that the record resides with the patients and the patients grant permissions to institutions, clinicians, researchers, and other users of medical information. It will be a distributed, web-based, personally controlled electronic medical record system that is ubiquitously accessible to the nomadic user, built to public standards, and based on opensource tools and technologies. We put forth principles to guide development of patient controlled records as below: |
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| • Consumers are managing bank accounts, investments, and purchases on line, and many turn to the web for gathering information about medical conditions; they will expect this level of control to be extended to online medical portfolios. • Record systems should be able to accept data (historical, radiological, laboratory, etc) from multiple sources including physician's offices, hospital computer systems, laboratories, and patients' personal computers. • Giving patients control over permissions to view their record (as well as creation, collation, annotation, modification, dissemination, and use) is key to ensuring patients' access to their own medical information while protecting their privacy. |
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